Columbia Center for Oral History Portal > Oral history interview with Dana Kuhn, 1991.
Creator: | Kuhn, Dana | Project: | Hemophilia oral history collection. (see all project interviews) | Phys. Desc. : | sound file : digital preservation master, WAV files (96 kHz, 24 bit) transcript: 33 pages | Location: | Columbia Center for Oral History | Full CLIO record >> |
Scope and ContentsChildhood experiences with hemophilia; presence of fluctuating serum Factor VIII level; problems playing sports, etc., as teenager with hemophilia; early adulthood involvement with local National Hemophilia Foundation (NHF) chapter; lack of knowledge regarding hemophilia in medical community in southern United States; masculinity and self-image in face of hemophilia; exposure to HIV in Factor VIII supply; subsequent anger at gay community and at pharmaceutical companies; difficulties of researchers in convincing Federal Drug Administration of presence of HIV in blood supply; effect on interpersonal relations of HIV infection; spouse’s diagnosis of HIV and problems in obtaining proper care; current involvement in hemophilia risk reduction counseling; lack of counseling for self and children after spouse’s death and subsequent self-counseling; involvement with NHF, AIDS Task Force, etc.; involvement in developing Men’s Advocacy Network of the NHF (MANN); tensions between HIV-positive and HIV-negative people with hemophilia; the comprehensive care model for people with hemophilia; political issues regarding hemophilia and HIV; changes in spiritual beliefs as response to hemophilia and HIV infection
SubjectsAccess ConditionsCopyright by the Trustees of Columbia University in the City of New York, 2016
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