crown CU Home > Libraries Home
Columbia Center for Oral History Portal >

Oral history interview with David Agle, 1990.

Creator: Agle, David
Project: Hemophilia oral history collection.
(see all project interviews)
Phys. Desc. :sound file : digital preservation master, WAV files (96 kHz, 24 bit)
Location: Columbia Center for Oral History
Full CLIO record >>

Scope and Contents

Early involvement in psychiatry of bleeding disorders and work with Dr. Oscar Ratnoff; parental concerns and coping mechanisms regarding children with hemophilia; involvement with National Hemophilia Foundation (NHF) and their Medical and Scientific Advisory Council (MASAC) - first mental health practitioner to serve on that committee; formation of Mental Health Committee of the NHF; first national meeting of this group in 1975; involvement in developing mental health components of federally funding comprehensive care centers; comparison of hemophilia care to care of other chronic diseases; concept of a "hemophilia community" and "communities" surrounding other chronic diseases; Oscar Ratnoff’s caution regarding using pooled lyophilized blood products to treat people with hemophilia; healthy versus unhealthy use of denial among people with hemophilia; "counter-phobia" or risk-taking behaviors in people with hemophilia; similarities and differences in people with hemophilia on home-care versus hospital-based care; the study of family psychiatric therapy for people with hemophilia and their families; acceptance of mental health care as an aspect of comprehensive care and reasons for that acceptance - e.g., leadership personalities and small size of hemophilia community; possible efficacy of hypnosis in treating hemophilia; development of psychiatry as a specialty post-World War II through late 1970s; mental health aspects of the advent of AIDS in hemophilia population; education and risk-reduction efforts regarding HIV and people with hemophilia versus consideration of psychological factors


Access Conditions

Copyright by the Trustees of Columbia University in the City of New York, 2016

Using this collection

Columbia Center for Oral History

Columbia University
535 West 114th Street
801 Butler Library, Box 20
New York, NY 10027
(212) 854-7083


Columbia Center for Oral History