Oral history interview with Sharon Barrett, 1991.

Scope and Contents

Organizational changes in the Program over time; issues involving the distribution of grants; sharing of grants by hemophilia facilities/providers; "affiliate" versus "subcontract" status of grantees; relationship of grants and regionalization of hemophilia care; community/network among people with hemophilia, care providers, and so forth; function of and prominence of the telephone within the hemophilia community/network; effect of AIDS/HIV on the hemophilia community; women’s roles in/effect on hemophilia community; hemophilia model of healthcare delivery; differences in funding from federal government versus voluntary agencies; implementation of the Evaluation Project at NHP; roles of NRCC and HANDI; collaboration between NHP, Centers for Disease Control, and National Hemophilia Foundation (NHF); Tri-Agency Collaboration Model; involvement in planning NHF’s annual meeting; changes in that meeting’s structure; involvement in Chapter Outreach Development Project; outreach to minorities with hemophilia, to women, and so on; role of health educators/use of health education models; development of men’s peer group; service delivery model versus research model regarding hemophilia treatment. Transcript only includes sessions 1 and 3

Subjects

• AIDS (Disease)--United States--History.
• Barrett, Sharon--Interviews.
• Centers for Disease Control and Prevention (U.S.)
• Health services administrators--Interviews.
• Hemophilia--Political aspects.
• Hemophilia--Social aspects.
• Hemophilia--United States--History.
• Interviews.
• National Hemophilia Foundation.
• Oral histories (document genres)
• Resnik, Susan, 1940- interviewer.

Access Conditions

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