Columbia Center for Oral History Portal > Oral history interview with Paul Phillips, 1987
Creator: | Phillips, Paul | Project: | Hemophilia oral history collection. (see all project interviews) | Phys. Desc. : | sound file : digital preservation master, WAV files (96 kHz, 24 bit) transcript: 123 pages transcript: 62 pages | Location: | Columbia Center for Oral History | Full CLIO record >> |
Biographical NotePaul Phillips is a pseudonym for the narrator that Susan Resnik used in her book Blood Saga: Hemophilia, AIDS, and the Survival of a Community
Scope and ContentsFinancial difficulties at NHF in early 1980s; advent of AIDS in hemophilia community; Risk Reduction Program for preventing HIV in people with hemophilia; regionalization of healthcare delivery in hemophilia community; lobbying for congressional support of regional treatment centers; treatment centers versus local NHF chapters as centers for advocacy and so forth; migration of people in hemophilia community to cities with comprehensive care centers; limitations of regional centers; effect of advent of AIDS on comprehensive treatment centers/regionalization; "hemo-homo" wars in early AIDS era; Pediatric AIDS Conferences and hemophilia; HANDI - Hemophilia and AIDS/HIV Network for the Dissemination of Information; involvement of the Henry family in the hemophilia community; roles and responsibilities of NHF; Chapter Outreach Demonstration Project; disagreements between chapters and national office of NHF; possibilities for future cure for hemophilia
SubjectsAccess ConditionsCopyright by the Trustees of Columbia University in the City of New York, 2016
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