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Oral history interview with Regina Butler, 1990.

Creator: Butler, Regina
Project: Hemophilia oral history collection.
(see all project interviews)
Phys. Desc. :sound file : digital preservation master, WAV files (96 kHz, 24 bit)
Location: Columbia Center for Oral History
Full CLIO record >>

Scope and Contents

Involvement in creating Hemophilia Patient/Family Model; education of families regarding home care; "cyclical" nature of hemophilia community; data collection; Philadelphia Child Guidance; working with families of people with hemophilia; relationship between gay and hemophilia communities; use of Factor VIII concentrate versus cryoprecipitate in children; early responses to AIDS in hemophilia community; emotional responses to AIDS among families and caregivers; changes in make-up of hemophilia caregiving team; cooperation between area hemophilia treatment centers; involvement in NHF Nursing Committee: NHF Nursing Committee Educational Resources Project; development and use of Patient/Family Model; involvement of families of caregivers; high number of female hemophilia care providers; "safe sex" issues in adolescent people with hemophilia; changes over time in hemophilia nurse's role; current treatment for newly diagnosed people with hemophilia; relationship with Centers for Disease Control and with Maternal Child Health Bureau; possibility of future cue for hemophilia via genetic research; use of synthetic blood products to treat hemophilia


Access Conditions

Copyright by the Trustees of Columbia University in the City of New York, 2016

Using this collection

Columbia Center for Oral History

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Columbia Center for Oral History