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Oral history interview with Charles Carman, 1990

Creator: Carman, Charles
Project: Hemophilia oral history collection.
(see all project interviews)
Phys. Desc. :sound file : digital preservation master, WAV files (96 kHz, 24 bit)
Location: Columbia Center for Oral History
Full CLIO record >>

Scope and Contents

Childhood in New Mexico; diagnosis of and experience with hemophilia and with hospitalizations for treatment; ethic of voluntarism in hometown and its influence on him; change in treatment from whole blood to fresh frozen plasma to cryoprecipitate and to comprehensive care; issues of "denial"; lack of risk-taking behavior as child/teen with hemophilia; factors which produced many hemophilia leaders out of Ohio, versus people with hemophilia influencing those factors; involvement in local hemophilia chapters; aspects of the hemophilia "community"; experiences with discrimination on the job site due to having hemophilia; involvement in defining state standards for comprehensive care centers; involvement in National Hemophilia Foundation (NHF); problems at NHF and consequent election and experiences as its President; definition of hemophilia "community" and roles and responsibilities of each of its elements; role of the federal government in relation to the hemophilia community; "Blood Money" game/simulation of problems and outcomes in relation to hemophilia care; involvement in World Federation of Hemophilia (WFH); and its international hemophilia training centers; limitations in hemophilia care in developing countries; economic aspects of hemophilia care in the future; possibilities of future cure for hemophilia through gene therapy; changing relationship between WFH and NHF; personal philosophies and rewards of leadership in the hemophilia community

Subjects

Access Conditions

Copyright by the Trustees of Columbia University in the City of New York, 2016

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