Columbia Center for Oral History Portal > Oral history interview with Maribel Clements, 1990
Creator: | Clements, Maribel | Project: | Hemophilia oral history collection. (see all project interviews) | Phys. Desc. : | sound file : digital preservation master, WAV files (96 kHz, 24 bit) transcript: 43 pages | Location: | Columbia Center for Oral History | Full CLIO record >> |
Scope and ContentsDifferences in hemophilia care from early 1970s to late ‘70s; use of Factor VIII concentrate versus cryoprecipitate; familial relationships of people with hemophilia; risk-taking behavior among people with hemophilia; involvement in local NHF chapter; NHF Nursing Committee - development of educational materials for schools, families, people with hemophilia - development of Patient/Family Model; patient teaching within the hemophilia treatment center; unemployment rate/school absenteeism of people with hemophilia; changing composition of hemophilia treatment team over the years; isolation of people with hemophilia from others in the community; early responses to AIDS; differences in rate of HIV contraction between users of Factor VIII concentrate and cryoprecipitate; AIDS/HIV education for hemophilia care providers; personal emotional response to working with people with AIDS; support networks; involvement of infectious disease specialists in treating hemophiliacs with AIDS/HIV; Women’s/couple support groups
SubjectsAccess ConditionsCopyright by the Trustees of Columbia University in the City of New York, 2016
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