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Oral history interview with Maribel Clements, 1990

Creator: Clements, Maribel
Project: Hemophilia oral history collection.
(see all project interviews)
Phys. Desc. :sound file : digital preservation master, WAV files (96 kHz, 24 bit) transcript: 43 pages
Location: Columbia Center for Oral History
Full CLIO record >>

Scope and Contents

Differences in hemophilia care from early 1970s to late ‘70s; use of Factor VIII concentrate versus cryoprecipitate; familial relationships of people with hemophilia; risk-taking behavior among people with hemophilia; involvement in local NHF chapter; NHF Nursing Committee - development of educational materials for schools, families, people with hemophilia - development of Patient/Family Model; patient teaching within the hemophilia treatment center; unemployment rate/school absenteeism of people with hemophilia; changing composition of hemophilia treatment team over the years; isolation of people with hemophilia from others in the community; early responses to AIDS; differences in rate of HIV contraction between users of Factor VIII concentrate and cryoprecipitate; AIDS/HIV education for hemophilia care providers; personal emotional response to working with people with AIDS; support networks; involvement of infectious disease specialists in treating hemophiliacs with AIDS/HIV; Women’s/couple support groups

Subjects

Access Conditions

Copyright by the Trustees of Columbia University in the City of New York, 2016

Using this collection

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