Columbia Center for Oral History Portal > Oral history interview with Eugene H., 1990
Creator: | H., Eugene | Project: | Hemophilia oral history collection. (see all project interviews) | Phys. Desc. : | sound file : digital preservation master, WAV files (96 kHz, 24 bit) transcript: 36 pages | Location: | Columbia Center for Oral History | Full CLIO record >> |
Biographical NoteEugene H. is a pseudonym for the narrator that Susan Resnik used in her book Blood Saga: Hemophilia, AIDS, and the Survival of a Community
Scope and ContentsWork as a nurse coordinator at Cornell Medical Center hemophilia program; recruitment to work for Hyland Pharmaceutical company; hemophilia care in the 1950s and 1960s; ostracism and overprotection as a child with hemophilia; initiation of support group for adolescents with hemophilia at Cornell; lack of knowledge among families and people with hemophilia while at Cornell; involvement in creation of Patient Family Teaching Guide; participation in the Nursing Committee of National Hemophilia Foundation; aspects of the hemophilia "community"; issues of denial and acceptance in people with hemophilia; aspects of independence versus interdependence in people with hemophilia; evolution of products for the treatment of hemophilia; move from nursing to work for blood product manufacturing company; first awareness and reaction to HIV in the hemophilia community; usefulness of hemophilia care model for other chronic diseases; uses of genetic engineering to treat/cure hemophilia; involvement in research projects to development new products to treat hemophilia; differences and similarities in HIV between people with hemophilia and other populations; issues of stigma and prejudice for people with hemophilia and people with HIV
SubjectsAccess ConditionsCopyright by the Trustees of Columbia University in the City of New York, 2016
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