Columbia Center for Oral History Portal > Oral history interview with J. William Flynt, 1991
Creator: | Flynt, J. William | Project: | Hemophilia oral history collection. (see all project interviews) | Phys. Desc. : | sound file : digital preservation master, WAV files (96 kHz, 24 bit) | Location: | Columbia Center for Oral History | Full CLIO record >> |
Scope and ContentsInvolvement in evaluation HIV/AIDS risk reduction program of National Hemophilia Program (NHP) and in facilitating improvements in that program; negative perceptions of hemophilia treatment centers regarding HIV prevention; founding of HANDI; involvement in planning 1990 meeting in Nashville, Tennessee, of hemophilia treatment center staff, Center for Disease Control personnel; Maternal Child Health Bureau (MCHB) personnel, and National Hemophilia Foundation (NHF) personnel; disagreements between consumers and physicians at this meeting; weakness of medical model of hemophilia care in light of AIDS/HIV; definition of hemophilia community as inclusive of pharmaceutical providers; responsibilities of hemophilia community; tensions between and cooperation among various hemophilia organizations - NHF, CDC, MCH; changes in leadership in hemophilia community over time; isolation and denial regarding HIV/AIDS among members of hemophilia community; education versus support of people with hemophilia; variations of comprehensive care model within hemophilia care; similarities and differences of hemophilia comprehensive care programs and those of other chronic diseases; changing "psycho-dynamics" between people with hemophilia and providers over time and in light of AIDS/HIV; future of hemophilia care
SubjectsAccess ConditionsCopyright by the Trustees of Columbia University in the City of New York, 2016
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