Oral history interview with Paul Haas, 1990

Scope and Contents

Discovery that son had hemophilia; self-education and choices made regarding how to raise sons with hemophilia; involvement with local hemophilia chapter; involvement with Ohio state hemophilia advisory committee and work with Charles Carman; service on the Board of Directors of the NHF; questions of cost of and reimbursement for hemophilia care products; early emphasis as NHF President on local chapter involvement; advent of AIDS and of dramatic increase in costs of hemophilia products during tenure as President; aspects of the "hemophilia community(ies)"; questions regarding role and image of NHF regarding relationship of hemophilia to HIV; mix of lay and medical persons in NHF leadership; sources of funding for NHF; education versus research issues at NHF; tripartite leadership model between NHF, Centers for Disease Control (CDC), and Maternal Child Health Bureau (MCHB); "four pillars" of the NHF (staff, chapter leadership, medical leadership, and lay volunteers); need of local chapters to take the next step in dissemination of information; issues of denial in hemophilia community

Subjects

• AIDS (Disease)--United States--History.
• Centers for Disease Control and Prevention (U.S.)
• Haas, Paul--Interviews.
• Hemophilia--Political aspects.
• Hemophilia--Social aspects.
• Hemophilia--United States--History.
• Hemophilia in children.
• Interviews.
• National Hemophilia Foundation.
• Oral histories (document genres)
• Resnik, Susan, 1940- interviewer.

Access Conditions

Copyright by the Trustees of Columbia University in the City of New York, 2016