Columbia Center for Oral History Portal > Oral history interview with Beatrice Pierce, 1990Scope and ContentsEarly involvement with husband; consequent volunteer work in hemophilia field; aspects of the hemophilia "community"; involvement in starting a women’s support group (Women’s Outreach Network) for female relatives of people with hemophilia; differences and similarities in needs between wives and mothers of people with hemophilia; effects of HIV on hemophilia community; the future of hemophilia treatment; "factions" within National Hemophilia Foundation (NHF) and the hemophilia community; The "red bed" as a result of bleeding after losing baby teeth in children with hemophilia; issues regarding HIV testing and confidentiality; importance of the hemophilia community support system
SubjectsAccess ConditionsCopyright by the Trustees of Columbia University in the City of New York, 2016
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