Oral history interview with Glenn Pierce, 1990

Scope and Contents

Experiences growing up with hemophilia; division of "hemophilia life" in to three periods: treatment with fresh frozen plasma from birth to age 12; switch to cryoprecipitate; advent of HIV; positives and negatives of attending a school for "crippled children"; changes in physicians and their treatment philosophies throughout childhood and teenage years; effect of hemophilia on social life; mother's support network; aspects of socializing in the hospital among children with hemophilia; aspects of the "hemophilia community"; change over time from being very open about his hemophilia to being very private about it as a result of HIV; physicians as childhood role models; aspects of denial among people with hemophilia and with HIV; questions regarding the dissemination of advice from the National Hemophilia Foundation (NHF) regarding HIV transmission, whether to have children, etc.; positives and negatives of the medical treatment-center approach to treating hemophilia; effects of advent of HIV on treating hemophilia at treatment centers; the future of hemophilia treatment; economic issues regarding hemophilia treatment

Subjects

• AIDS (Disease)--United States--History.
• Hemophilia--Political aspects.
• Hemophilia--Social aspects.
• Hemophilia--United States--History.
• Hemophilia in children.
• Interviews
• National Hemophilia Foundation.
• Oral histories (literary works)
• Pierce, Glenn--Interviews.
• Resnik, Susan, 1940- interviewer.

Access Conditions

Copyright by the Trustees of Columbia University in the City of New York, 2016