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Oral history interview with Marvin Gilbert, 1991

Creator: Gilbert, Marvin, 1939-
Project: Hemophilia oral history collection.
(see all project interviews)
Phys. Desc. :Transcript: 45 pages Sound recording: 2 sound cassettes
Location: Columbia Center for Oral History
Full CLIO record >>

Scope and Contents

Early involvement in hemophilia treatment at Mt. Sinai and as co-director of NHF; advent of cryoprecipitate as treatment for hemophilia; development of total knee replacements and of arthroscopic surgery and their use in people with hemophilia; references to hemophilia in Egyptian papyruses and in the Talmud; nineteen century literary references to hemophilia; living with hemophilia before recent treatment developments; development of hemophilia treatment center at Mt. Sinai; advent of physical therapy instead of bracing to treat joint problems in people with hemophilia; component of "hemophilia community"; distinction between being involved and being committed; differences between hemophilia and other chronic diseases; ethical considerations regarding HIV and performing surgery; advent of HIV in hemophilia population - early considerations, phenomenon of denial regarding HIV; hemophilia care providers in international community; hemophilia care in United States versus in other countries; leadership and activities of WFH; discussion of various surgeries to correct joint problems in people with hemophilia; current treatment with Factor VIII made from recombinant DNA; testimony to Senate subcommittee for funding purposes

Subjects

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Copyright by the Trustees of Columbia University in the City of New York, 2016

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