Oral history interview with Paul Phillips, 1987

Biographical Note

Paul Phillips is a pseudonym for the narrator that Susan Resnik used in her book Blood Saga: Hemophilia, AIDS, and the Survival of a Community

Scope and Contents

Financial difficulties at NHF in early 1980s; advent of AIDS in hemophilia community; Risk Reduction Program for preventing HIV in people with hemophilia; regionalization of healthcare delivery in hemophilia community; lobbying for congressional support of regional treatment centers; treatment centers versus local NHF chapters as centers for advocacy and so forth; migration of people in hemophilia community to cities with comprehensive care centers; limitations of regional centers; effect of advent of AIDS on comprehensive treatment centers/regionalization; "hemo-homo" wars in early AIDS era; Pediatric AIDS Conferences and hemophilia; HANDI - Hemophilia and AIDS/HIV Network for the Dissemination of Information; involvement of the Henry family in the hemophilia community; roles and responsibilities of NHF; Chapter Outreach Demonstration Project; disagreements between chapters and national office of NHF; possibilities for future cure for hemophilia

Subjects

• AIDS (Disease)--United States--History.
• Health services administrators--Interviews.
• Hemophilia--Political aspects.
• Hemophilia--Social aspects.
• Hemophilia--United States--History.
• Interviews.
• Lobbying.
• National Hemophilia Foundation.
• Oral histories (document genres)
• Phillips, Paul--Interviews.
• Resnik, Susan, 1940- interviewer.

Access Conditions

Copyright by the Trustees of Columbia University in the City of New York, 2016