Oral history interview with Karen Meredith, 1991.

Scope and Contents

Early involvement as nurse coordinator at hemophilia care center in mid-1970s; development of components of Patient-Family Education Models; formulation of International Nurses Committee of Word Federation of Hemophilia (WFH); impact of personal maternal responsibilities on professional responsibilities; development of camaraderie with female co-workers; circulation of Patient-Family model to other countries; characteristics of hemophilia community; responsibilities as Director of Georgia State Hemophilia Program; development of the Hemophilia Handbook; evolution of nursing care in hemophilia treatment; the "ah-hah" phenomenon in hemophilia education; confusion and misinformation in hemophilia community in early AIDS years; personal response to AIDS in hemophilia community; involvement with CDC; early responsibilities at CDC; comprehensive hemophilia care model and its relationship to other chronic diseases; future direction at CDC regarding hemophilia; "compliant" versus "non-compliant" patients and care providers; mechanisms for training hemophilia caregivers in delivering HIV prevention education; differing statistical figures for the prevalence of hemophilia; changes in National Hemophilia Foundation since 1970s. Digital transcript only contains first section of session 1 (pages 1-53 of 59 pages)

Subjects

• AIDS (Disease)--United States--History.
• Center for Disease Control.
• Health services administrators--Interviews.
• Hemophilia--Political aspects.
• Hemophilia--Social aspects.
• Hemophilia--United States--History.
• Interviews.
• Meredith, Karen--Interviews.
• Nurses--Interviews.
• Oral histories (document genres)
• Resnik, Susan, 1940- interviewer.
• World Federation of Hemophilia.

Access Conditions

Copyright by The Trustees of Columbia University in the City of New York, 2016